Carys and a late-night visit to the ER

Carys was fine yesterday. She ate well. She played hard. She went to bed easily.
She had a fever earlier in the week and has been complaining of a headache off and on. No big deal though. She just completed her ear infection medication on Tuesday and I figured it was about time for a precursor sinus infection to start before the return of the ear infection. That’s the way it usually goes.

Chad and I had a hard time going to sleep last night. We just couldn’t! We watched television for a while. Turned it off. Turned it back on. I finally turned it off a little after midnight.
At first, I’m dreaming. There’s a horrid sound somewhere in my house. I can’t figure out what it is.
And then the sound of my dream and the real-life sound of my child gasping for breath mingle. And it’s not good.
I’m awake, suddenly at 2am, trying to put the pieces of my broken dream together and realizing that something is terribly, terribly wrong with my child.

Carys is hysterical. She can’t catch her breath.
Every time she inhales, her body expels a terribly loud and distinct bark.
I guide her into the kitchen, trying to calm her down.
She is crying, telling me she can’t breathe and her throat hurts.
She drinks a bit of water, no help.
I have no caffeine (soda) and I don’t know that I can wait for a cup of coffee to be made.
I grab a flashlight and peek inside her throat.
I can see the tissue swelling and forcing her airway closed.

I take her outside, hoping the cool night air will be enough to open up her airway.
It helps a bit, but my mind is made up.
Chad & I dress quickly and make our way to the emergency room.
My mom stays with Cailyn.

Before we pull out of our neighborhood, Carys’ breathing has noticeably improved. The rush of cool night air coupled with the change in humidity from our house – outside – van worked a little bit of respiratory magic.
Briefly, I think about heading home. No one wants to sit in the emergency room. I don’t want to traumatize my daughter. But I decide to keep going; she needs help breathing whether I can hear the labor in her breathing pattern or not. I was scared enough to think of calling the ambulance only minutes before; and I’d rather have her checked out NOW than wait for the pediatrician’s office to open on Monday.

We arrive in an adrenaline-filled haze; Carys tightly gripping her baby doll and light blue crocheted blanket.
And we’re the only patients in the waiting room.
I am relieved that we will be seen quickly – and that Carys seems at ease.
Her breathing can quickly spiral out of control when she gets upset.

The ER doctor is shocked to learn that Carys actually does have croup. He was convinced it was asthma – which I’ve suspected for some time now, but have not been able to “prove”.
She received a dose of oral steroids and a breathing treatment via a plastic face mask.
After her treatment, which lasted about 15 minutes tops, we’re moved to a more comfortable room with a television. We have to stay for a few hours so Carys can be monitored. The medications give her a variable heart rate, ranging from 100 to 170 beats per minute. This is completely normal, and the doctor just wants to keep an eye on her for a bit.

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Just for the record, I did not carry my camera with me.
I had my cell phone. And Carys requested I take her picture – bed head & all.

Around 4:45, we’re discharged from the ER and are on our way home.
I am exhausted.
Carys is wired from the medicines and the snacks from the hospital.
I actually don’t remember much about the ride home. I vaguely recall pulling into our driveway a little after 5am, but the steps in between are a complete mystery.
We arrived home safely and drifted to sleep, relieved that Carys was well and breathing easily.

The morning met me early.
I was a second shooter at a wedding this morning and had to be ready to go by 8am.
Let’s just say that the coffee was aflowin’ this morning, and a nap was on my to-do list.

Carys is much better today.
I can still hear a bit of wheeziness in her breathing if she runs, and she has a nasty little cough that will be with her for a few days.

In the morning (Sunday), she will her attend her first Girl Scout adventure; a catch-and-release fishing day. She is so excited about going, and I hope we can both make it without needing a nap.
I hope the rest of our week is uneventful.
And I hope yours is, too!

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Fundraiser highlights

The fundraiser is coming up soon!
Saturday, April 24
10am – 2pm
Garner Advent Christian Church
Directions – see the bottom of this post

* I have meal tickets available for purchase. If you are interested in buying your meal ticket in advance, please email me. $7 each. Purchase and I’ll mail it to you or we’ll hold it for you on the day of the event.

* Bracelets & t-shirts will be available the day of the event. If you are unable to come but would like to purchase one of these items, please let me know via email. 
Bracelets: $3 each (or two for $5).
T-shirts: $20 each (Youth S, M, L and Adult M, L, XL). T-shirts are limited.

* The Silent Auction is full of goodies! Watch my blog and FaceBook next week for a full list of items available for bidding. You do not have to be present to win, although some of these items will go down to the wire – so I would advise hanging around 🙂

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DIRECTIONS

I just cut & paste from Google.
So if you get lost, call Google headquarters.
You’ll have to, um, Google their phone number.
From Fayetteville area:

 

Take I-95 N 25.1 mi
Take exit 81 to merge onto I-40 W toward Raleigh 22.8 mi
Take exit 306A to merge onto US-70 W toward Garner 3.1 mi
Take the Vandora Springs Rd exit 0.2 mi
Turn left at Vandora Springs Rd
Church is on the right, 1120 Vandora Springs Road

From Triangle area:

Take I-40 W/US-64 W via the ramp to I-440 1.0 mi
Take exit 298A for US-401 S/US-70 E/N Carolina 50 S/S Saunders St toward Fayetteville 0.1 mi
Turn right at N Carolina 50 S/S Saunders St/US-401 S/US-70 E
Continue to follow N Carolina 50 S/US-401 S/US-70 E 1.7 mi
Slight left at N Carolina 50 S/US-70 E 1.9 mi
Take the exit toward Vandora Springs Rd 0.2 mi
Turn right at Vandora Springs Rd
Destination will be on the right, 1120 Vandora Springs Road

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A little bird…

A little bird told me that quite a few people had decided not to attend Chad’s fundraiser in two weeks. I have to admit, I’m a little bummed to hear that.
However, when I discovered the reason why they wouldn’t be attending, I felt the need to address it here.

I want everyone to know that Chad (and I) would love to see you.
Chad has good days and bad days with his memory – but I’m sure he will remember you!
He will remember your face or name or how you know each other.
He may remember everything. Or you may have to help him a little.
But he will remember.
He may not have a long conversation, but he will talk. And he will sincerely appreciate you coming by to see him, even for a few minutes.

Don’t be nervous. Or scared. 
It’s still Chad.
And he wants to see you.
He is looking forward to it – very much!
Do I think he’s a little nervous about so many people wanting to see him in one day at one place? Sure – a little. But he’s also excited. He misses his co-workers and friends. And he’s very tired of sitting in the house all day everyday.

Not quite sure what to expect from Chad, or what a conversation with him might be like now?
I assure you it’s probably not what you think.
It will be good for him.
It will be good for you.

And I welcome you to email me or call if you have any reservations, hesitations or questions.

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Little update

Sunday – Easter. Girls were cute in their dresses and their bellies were full of chocolate by 8am. Went to church. Had to find the ONLY urgent care center open on Easter Sunday for Carys her pet ear infection. Had family over for lunch. Turned my laptop in for repair – again. Hope to have it back soon.

Monday – Left for Asheboro. Girls really enjoyed the pool and hot tub at the hotel, and dinner at Rockola.

Tuesday – Enjoyed the zoo, 10am – 3pm. It was hot. The girls were whining. We skipped quite a bit – but I’m at peace with it. If you add this trip to the last trip almost 2 years ago, then we have successfully seen everything at the zoo at some point. Chad did well with all the walking and heat. We all participated in a big fat nap before dinner. Girls, again, really enjoyed the pool and hot tub at the hotel. And dinner at Chili’s.

Wednesday – Home. Tired. Hungry. I cooked for the first time in a week, I bet.

Thursday – Heard from Chad’s neurologist. He was denied a drug that really seemed to help. Still ticked at insurance, but also thankful to have it. Partied at the park with our neighbors. Faith’s 6th birthday! Pizza & cake for dinner. I am forgetting how to cook. Carys is not thrilled about going to school tomorrow for a snow make-up day.

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A break

Things are getting a little hectic here around the Lanford house.
Soccer twice a week, Girl Scouts, Spring Break, Easter, Carys’ newest ear infection….and Chad’s birthday (yesterday). The fundraiser is right around the corner — April 24. Don’t forget!!
And my laptop is circling the drain. Again.
And I can’t catch my breath.
I’ll be back soonish, when my computer can handle the chaos that has become our life 🙂

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Another tooth, another dollar

The school called today. Which is never good.

When I heard Chad and the teacher talking about an accident involving Carys, my heart hit my feet.
Then I quickly realized that Carys knocked her tooth out.
I started to panic a little bit.

Then I remembered she has had two wiggly top teeth.
And sure enough, she knocked out a wiggly one.
About time she got rid of one of these pesky teeth. They have been wiggly for at least 4 months.

I’m trying to convince her to pull the other one out now.
I hear the ToothFairy pays big bucks if you lose more than one tooth in 24 hours.
And it’s Wednesday. Our neighbor, Hannah, declared that the ToothFairy pays DOUBLE on Wednesday.

Four teeth down. Many, many more to go.
Le Sigh.
The ToothFairy may have to make an ATM run.

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Oh.
And tonight while eating dinner, the other little tooth started to give her some problems.
So, it’s missing now, too.
Is this a cute little grin, or what?!?

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More signs of Spring

I found my first poisonous spider and snake of the season. Joy. Yippee.
The only thing I really love about Winter is that snakes hibernate. And I can live in blissful ignorance and refuse they exist all together. (And it was a young black widow. And a young copperhead, in case you’re curious.)

The girls have soccer practice – Cailyn on Mondays. Carys on Tuesdays.
Gosh, I am s0 tired on Wednesdays.

Carys has Girl Scouts every other Thursday.
I really struggle to remember which day she is supposed to go.

The grass needs cutting on a semi-regular basis now.
Chad actually felt like cutting the lawn last week!

The grill needs a little tune-up.
Or we need a new grill. We’re not sure which is more costly yet.

The cat has about 12 mini heart attacks a day while chasing the bountiful birds and squirrels in the backyard.
By the way, thank goodness I got my cat spayed! It’s cat-matin’ season…I hear them “singing” as I type this.

The van needs washing, but it’s in the shop.
I miss that van. Those are four words I never thought I’d say.

Spring Break is next week.
And we’re actually getting out of town for a few days. Ahhhhhhhh!

And yet, it’s not officially Spring until there is a yellow sheet of pollen covering my sidewalk.
And van.
And seeping in through the windows.
I’m sure that’s coming. And soon.

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A Prayer in Spring

Oh, give us pleasure in the flowers today;
And give us not to think so far away
As the uncertain harvest; keep us here
All simply in the springing of the year.

daffodils
Oh, give us pleasure in the orchard white,
Like nothing else by day, like ghosts by night;
And make us happy in the happy bees,
The swarm dilating round the perfect trees.

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And make us happy in the darting bird
That suddenly above the bees is heard,
The meteor that thrusts in with needle bill,
And off a blossom in mid air stands still.

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For this is love and nothing else is love,
To which it is reserved for God above
To sanctify to what far ends he will,
But which it only needs that we fulfill.

A Prayer in Spring
Robert Frost

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You’re kidding me, right?

On Wednesday, I was involved in a little fender bender en route to Carys’ school.
Minor.
No injuries.
We’re all okay.

Some of you saw my FaceBook updates as I passed time waiting for the Po-Po (my brother says that’s cool lingo for “police”. I’m cool enough to use that word, right?). It was a long wait – and thankfully I have a great friend who was willing to take Carys to school for me. Cailyn, though, had to wait things out with me. She didn’t mind though. She happily watched the Polar Express for the 43rd time.

The authorities came after an hour. We exchanged versions of the incident — which was not my fault, for the record. Some of you may remember that I was rear-ended in October. Which again, was not my fault. People just like to hit me, I guess.

Today, I finally got in touch with the other driver’s insurance company – which, coincidentally, is the same insurance company I dealt with last year. Which – for the record – was not my fault. I’m just sayin’….

Repairs should be made (and I should receive a rental) within the next week or so.
I was feeling pretty accomplished today; resolving this issue as quickly as possible.

And yet, I forgot something.

I forgot that I would receive a few letters from local attorneys who would love to represent me if I decided I was injured from being rear-ended at 5 miles per hour.
I cannot believe I forgot that.
Last time I was involved in an accident (that wasn’t my fault, remember?), I received four letters from attorneys and chiropractors.

Oh. But. This. Time.
This time was special.

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I received FIFTEEN letters today.
The accident was on Wednesday morning. Today is Friday. They didn’t really waste any time, now did they? They had to have those letters in the mail Wednesday afternoon. Heck, I couldn’t even get the insurance company to answer the phone until this morning!

Then, I felt a little deflated.
All those letters weren’t actually for me.
Oh no, friends.
Because my children were in the van with me, they each also received a letter from various attorneys and chiropractors.

I told them they had mail.
They were excited.

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Then, they lost their excitement when they tore into each envelope and discovered a-whole-lot-a-nothin’ to be excited about. They thought the letters with magnets inside were cool. And I now have a permanent reminder on my fridge that I have a personal accident attorney who is always on my side, lest I ever forget. I have tried to throw it away a few times. But Cailyn insists it’s hers and I am under strict instructions not to touch her stuff – it came in the mail with her name on it. So…I assume the refrigerator magnet fairy will be making a visit soon. I’ll have to tell Cailyn a story about some poor little kids that have no fridge magnets…

I just can’t believe the amount of money that was wasted in sending me letters, magnets, CDs (oh, yes!) and full-color press printed STUFF that I do not need or want.

All of that hoopla….for a little scratched, banged up, slightly messed up rear bumper.
Are you kidding me?!?

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Another day, another doctor

Today, Chad & I visited his neurologist. Actually, we usually see the PA, who we adore.
Sadly, she will be leaving the practice in a few weeks and today was probably the last time we’ll see her. We hate that she is leaving, and we hope we’ll form a similar relationship with her successor.
She is such a wonderful advocate for Chad’s health though, and gave us her home phone number so we can call her if we need to kick around any ideas or would like to get her advice on any new treatment options. I thought that was an outstanding thing for her to do!

Since the neurologist is now taking over responsibility for Chad’s seizure and pain management medications, we left with a few new prescriptions — and some hope that Chad can feel better. Do we want to medicate Chad for every symptom? No, of course not. No one really wants Chad to live a ultra-medicated life. But, if we can help him feel better and give him a better quality of life — then yes. Yes, we will try new medications until we find something that helps.

Chad has been on Keppra for seizure control since December 2007. His dosage doesn’t change too often and his levels are usually in range when they are checked via blood samples. Carbatrol was added about a year ago because he started having seizures again, and it was felt that he shouldn’t go up much higher on Keppra.
Well….now Chad will start Topamax, a drug that controls seizures and seems to have some positive effects for people who suffer from migraines. Chad doesn’t suffer from migraines, technically, but it can’t hurt to try Topamax.
If it seems to help, then we will back off the Carbatrol to keep him on as few seizure meds possible.

We’ll also be trying a medication that would make Chad more alert during the day, in hopes that he will sleep better at night. This is just an experiment, and it may not help at all. Our goal is not to make Chad feel jittery or hyper during the day, but to stimulate him a little more so his body needs (and will hopefully receive) more quality rest at night. The name escapes me at the moment; Provigil, maybe.

On to pain management…
None of us are eager to start Chad on heavy narcotics. We want him to feel better, more like himself, and not strung out.
We left with a script for a slightly different dose of what Chad is currently taking. We’re not going to fill it right now, in hopes that the two aforementioned drugs will help Chad’s pain lessen in intensity or frequency. But, if we need it, we have it.
And we also left with the understanding that the neurologist’s goal is to help Chad deal with the small, every day “things” that keep him from feeling his best. And she will let us decide when we are ready for something stronger — which is refreshing to hear. We have heard “NO” so often in the last few months, and we fully expected to hear it again today. Chad doesn’t have to be in pain – they will help! Another answered prayer, for sure.

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