Happy 5th Birthday, Cailyn!

Dear Cailyn,
Five short years ago, you came screaming into my life.
A chubby little newborn with a voracious appetite, a colicky demeanor and a dazzling pair of blue eyes.
You had me wrapped around your tiny little finger from the first moment I laid eyes on you.

You are my baby, the littlest Lanford Lady. You are my last baby. And I feel like you have that all figured out…already.
Sometimes, I wonder how you so often get your way…but I know I give in far too often than I should.
Those eyes…those dimples…I have to find some sort of antidote for their charms before you turn sixteen and ask me for a car I know you don’t need…

As I was putting together your birthday video, it hit me that this is the last birthday that you will have any pictures of yourself with Daddy from the last year. I know how challenging the last year has been for you and how very much you miss your Daddy.

It also hit me that you’ve changed so much in the last year. Emotionally; yes. And physically? Oh, yes.
This time last year, you still looked like a toddler.
Now, today, you look like a little lady.

You woke up on your birthday, feeling a bit wiser, a bit taller and a bit more confident than you did the night before.
That’s the magic of being five…a world of possibility that seems to be born overnight.

You are a perfectly equal mix of your Daddy and I; a detail-oriented planner, a shopping lover, a perfectionist, a daydreamer, a steadfast friend and a social butterfly.
You are very verbal about your emotions, which you clearly got from me; and you’re very thoughtful with your reactions, which you clearly got from him.

The rest of your personality is all YOU.
You were uniquely wired from birth to require more glitter, more sparkle and more sequins than should be humanly possible.
I hope you always keep your fashion sense…even though I’m sure I foresee a few fights arguments conversations in our future about your wardrobe selections as you pass into the teenage years. Thankfully, I have a few years to worry about that dilemma.

You have asked hard questions this year; questions that are hard for adults to wrap their head around…but you ask with a naturally inquisitive and pure heart. You make my heart swell with pride and unbelievable admiration when you remind us to be thankful for the beautiful life God has given us. I know, without a doubt, that I am shaping your future the way I should be; and I am grateful that your joyful spirit allows me to have such certainty.

Welcome to the fabulous year of FIVE.
A magical time that you will never forget, a time I hope you will always remember as the year all your dreams came true.

I love you.

High as the sky,
Deep as the ocean.

xoxo,
Mommy


Music: The Lovely Years, Fisher

cais 5th bday card daddy

Photo time!

We had a great weekend, full of birthday parties.
Cailyn’s actual birthday is coming up this Saturday, but her party was a week early.
She had a lot of fun with her little friends and her cousins (we did a joint birthday party this year since their birthdays are so close!).

cai bday party & 5yr pics 056
On Sunday, we went to S’s party – one of Cailyn’s preschool friends.
I dressed the girls all matchy-matchy because I felt like exerting my motherly authority of “BECAUSE I SAID SO!” when they asked me why they had to be twins for the day.
They were so cute that I had to do an impromptu photoshoot after the party. Cailyn needed her 5-year portraits done anyway…

Enjoy the pics :)
More to come later this week during Cailyn’s birthday video!

cai bday party & 5yr pics 250cai bday party & 5 yr pics 2cai bday party & 5yr pics 231 bwcai bday party & 5yr pics 219cai bday party & 5yr pics 178cai bday party & 5yr pics 181cai bday party & 5yr pics 171

The beginning of it all

Link to post from last year’s events.

May 11, 2010
One year ago

Today is the day.
The day I knew that something was happening.
The day I realized that the path we had been stumbling upon was going to be a bit trickier to navigate.
The day that my daughters witnessed our superhero seize in the road for over half an hour before paramedics were able to cease it.
The day we last spent the night at the hospital, missing our family and hoping for good news.
The day our lives began to change forever, irrepressible.
The day I finally learned that I, that we, are in control of nothing.

At the time, even though I knew there was something awry with the seizure and the state of IT, I never would have imagined the steep decline in Chad’s health in the following months.
Almost to the day, six months later, he left us.

I remember all the confusion about IT’s growth at the time; we were told initially there was no change.
And then, the following month, we were given a terminal diagnosis.

I don’t want to remember today.
I don’t want to forever remember the look of sheer panic and absolute fear in Carys’ voice and face.
I don’t want to remember what he looked like, lying in the road, with my hands under his head, tears in my eyes and a lump in my throat.
I don’t want to remember having to make hurried phone calls to family members, explaining the situation as concisely as possible through a rapid, trembling voice that was not my own.
I don’t want to remember that black overnight bag I had packed and ready to go at a moment’s notice, and I don’t want to remember how often I actually had to reach for it.
I don’t want to remember all the hospital visits or medication changes or physical changes or mental deficiencies.

As much as I try to push it from my memory, it is there.
Every second of every day.
It stings a little less lately, but it’s ever present.

Oh, no.
I just don’t want to remember any of that.

I want to remember this…

CLL (369)

And this…

CLL (439)
And all of this, too…

CLL (426)



CLL (432)
CLL (488)
CLL (464)
CLL (543)
CLL (549)
CLL (555)
CLL (614)
CLL (623)
CLL (624)
CLL (627)
CLL (647)
CLL (646)

For more than three years, we have been incredibly and extraordinarily supported by family members, friends and perfect strangers.

Thank you.
Thank you for caring for my family, for reaching out to us emotionally and financially.
Thank you for realizing you could make a difference in the life of another. Because you did. Greatly.

Thank you.
Thank you.
Thank you.

scenes from the last few days

002028032033

The NYC Chronicles

Snippets from conversations & a few tales during our wonderful stay in NYC…

We went to Benihana for dinner the second night.
And I met:
NYC 2010 080

Tracy Morgan.
Not a great shot of me – and he looks less than happy, too.
But he did preface my photo opportunity by saying he had to pee….so….
And I also found out that onions give him gas.
Fun times.

We went to Macy’s.
Oh, my. It’s bigger than you think it is.

086

FYI — chestnuts roasting on a street cart smell pretty nasty.
I heard they taste good.
But I couldn’t do it.

Carys: Wow. The subway smells like chicken nuggets.

Really? I didn’t know chicken nuggets smelled like that….

NYC 2010 171

NYC 2010 025

Cailyn in the subway: LOOK!!! A mouse!

That’s not a mouse.

The view of the city from 31 floors up was spectacular.

NYC 2010 019

51 floors up was pretty special, too.
I can only imagine how beautiful it is in the Summer…

NYC 2010 015

The Rockefeller Christmas tree was amazing.
And huge.
Amazingly huge.

097

The festively decorated storefronts were amazing.
The girls were mesmerized.

NYC 2010 115NYC 2010 113NYC 2010 114085084083NYC 2010 125

Cailyn’s favorite thing to do on the subway:

NYC 2010 138

Carys liked riding…

NYC 2010 133


Carys: “Mr. Chris, do you know what you’re supposed to do to strangers?”
We all panicked….
“You bite ‘em. My mommy told me that…”.
I think the men sitting next to her changed seats after that. At least she listens to my mommy-babble. Sometimes.

When Cai wasn’t asleep, she was dancing…
NYC 2010 280

We ventured to Chinatown, which is one of my favorite trips.
We saw lots of new things.

NYC 2010 175NYC 2010 176NYC 2010 179

From my FaceBook page:

I like it when I’m walking down the street & men
are tempting me with whispers about Tiffany,
diamonds, cashmere & purses. It’s like a dream
come true…but my dreams usually don’t require subtitles.
Go figure…

A petite woman asked us if we wanted a purse.
We said yes.
Then followed her quick-paced weaving through streets to an “office” building.
No offices there. Just fake storefronts and many, many lookouts for the fake purse market.

I kind of felt like Carrie Bradshaw for a while.
It was a little intimidating, and it was NO joke.
Thankfully, my fabulous tour guides were well versed in how-to-behave-properly-while-obtaining-copycat-merchandise.
I think it’s New Yorker 101.

And I have a great bag to show for it!

On Thursday, I also met a few ladies that I have been friends with since 2003.
I’ve never met them in person – we’re message board buddies. Long story for another time.
But it was great to meet them!

NYC 2010 147

Cailyn: Mommy! Someone dropped a bunch of candy on the steps!!!

NYC 2010 149

Nope.
It’s just Dylan’s Candy Bar.
Divine.

We visited Max Brenner on New Year’s Eve.
And had chocolate for dinner.

I had S’Mores something-or-other. And chocolate stout – also referred to as Big Girl Chocolate Milk.
Delish.

NYC 2010 269

Cailyn had something called a star-something chocolate waffle.
With gummy bears.
And vanilla bean ice cream.
And chocolate sauce.
And sugar.

NYC 2010 270

Carys had chocolate crepes.
And a sugar high.
In case you can’t tell…
NYC 2010 271

More to come.

three

Dear Chad,
You were just shy of your three year diagnosis anniversary.
You were given three months to live back in June.
It’s been three weeks since you left this place for somewhere better.
Wednesday is the third day of the work week – the day you left.

I just don’t think I like the number three.
And I really don’t like Wednesdays anymore either.

I had a few moments today when the grief hit me out of the blue.
Something simple – a song on the radio, seeing cookies in the cookie jar, reading an email someone sent me about you, haphazardly  seeing pictures of you when I was looking for something else. Pictures from a long time ago; when IT hadn’t entered our lives. We weren’t even married yet.
And there were some pictures from this Summer – with the girls and I. You looked so healthy in July. I just don’t understand how you could be gone when you look so good just months ago.

Yet, I do understand.
I know the brain cancer is a quick and quiet disease.
It steals things, little by little, until there is nothing little left to take.
Then it moves to the larger things; memories, motor functions, the ability to speak coherently.

But IT didn’t take away the way you looked at me from across the room, even when you couldn’t speak my name.
IT didn’t take away your prepared nature; you handled everything you knew you should – and then relinquished it all to me when you knew you weren’t able to do so any longer.
IT didn’t take away the grasp with which you hugged, kissed and caressed our daughters.
IT didn’t take away your humor and wit, even though IT slowed you down a little.
IT was unable to destroy your Faith or Hope in something bigger, something better for yourself.
IT was not allowed to take away our memories, even when I had to help you remember our life together.

We put up the Christmas tree.
I took a few days to decorate it.
And I’m not messing with any other decorations this year.
Just don’t feel like it.
I went shopping yesterday, trying to figure out what to buy for people.
Not really interested in shopping (if you can believe that, I know…)
I wasn’t going to do Christmas cards this year. Didn’t seem right.
But I did them anyway.
It stung when I typed our names on the bottom.
I automatically typed yours too – then realized it’s just the three of us this year.
There’s that dreaded number three again….

rings

The girls are handling your absence pretty well, all things considered.
And truth be told, I think it was harder on us when you moved to Hospice.
We all cried a lot then; and we cry now too – but it’s not quite the same as when you left the house in mid-August.
I think we all knew that was the beginning of the end; and it gave us an opportunity to grieve losing you without you actually being gone yet.

Carys’ birthday is next week. Seven years old.
I plan to give her the card you wrote for her – she will treasure it, I know.
I read it last week and I know you tried so hard to come up with something to say – and to spell correctly.
She will probably sleep with it under her pillow.

It doesn’t seem like a year has passed since you held her hand while she got her ears pierced for her sixth birthday.
She wants a pair of dangling earrings this year. She’s growing so fast, Chad.
And you would be so proud of her – even though I know you were – I think you would be amazed at her strength over the last three weeks.

I gave her a puppy for her birthday, a little early – sorry. I know you would have jokingly threatened to divorce me if I brought in any more animals.

Oh.
We got a kitten too — just mentioning it for full disclosure.

Today, I saw a bright blue sky with huge fluffy white clouds – the sun streaming through in patches to kiss the ground with warmth.
And I hoped you were seeing that beauty from the other side; it was blindingly beautiful. It reminded me of you and how much you loved to be outside with nature. I can just vision you raking leaves outside, humming along and making piles for the kids to jump into.

We miss you.
I miss you.
Even Lucy the wonder dog misses you.
I was wearing your jacket last night when I let her outside – she was smelling your scent and going absolutely insane.
I did finally teach her to sleep on her bed — and NOT in our bed. Sorry I didn’t do it sooner. You were right. I do sleep better without a 14-pound pup leaping on my kidneys in the middle of the night.

I hope you’re enjoying your time running laps and laughing hysterically and eating and seeing everyone we love who’s with you.
I can’t imagine what that is like; to be free and perfect and calm and whole.
No crying. No sadness. No pain.
I just can’t even imagine.

Even though I miss you fiercely, I am glad you are whole again.
Even though I am not, I am joyful that you are.

xoxo,

Skye

IMG_5982

Don’t wanna

Tomorrow, we have to leave the little piece of Heaven we’ve called home for a week.
And we don’t wanna.
Of course we’re ready to see our furry critters and sleep in our own beds.
But I’m not looking forward to doing normal things, like grocery shopping, paying bills or the school-and-homework shuffle.

All good things come to an end, I suppose.

We did have a fantastic day today.
Started with a late breakfast.
Went to the waterpark for a couple of hours.
Sailed away on a three hour cruise to snorkel (Both girls tried it. Both girls freaked out! Then Carys tried again for a few minutes.), see Iguana Island, find sea shells and see the beautiful natural areas of the island.
Ended with a beach party at the far end of the resort, sent some of Chad’s ashes to sea, and spent a little time in the hot tub before a much-needed shower.
Right now, the girls are watching television and getting ready for bed.
I’m putting off the start of my packing chores.

The next time I update, we will be on US soil…and probably very tired.
We’ve rested well during this trip, but I’m sure the lack of sleep will catch up with us when we leave the salty air and sunshine behind.

Here are a few pictures from today – enjoy!

TURKS CAICOS 144TURKS CAICOS 072TURKS CAICOS 097TURKS CAICOS 135TURKS CAICOS 074TURKS CAICOS 085TURKS CAICOS 002TURKS CAICOS 138TURKS CAICOS 146TURKS CAICOS 047

Happy Thanksgiving!

I hope you all had a peaceful day with family and friends, gathered around laughing and sharing memories. And making some new ones, too.
The girls and I had a traditional Thanksgiving Feast, complete with reggae playing in the background.
We left the table setting for four people tonight and shared what we were each thankful for in our lives.
We talked about Chad and how much we missed him being with us on Thanksgiving.
We shared our heartaches with each other and promised that it was okay for each of us to be sad and happy at the same time.

We had a busy, busy day.
The girls had breakfast with all the characters from Sesame Street. Cailyn was way more excited about it than Carys was.
She was very sad to see Cookie Monster, since that was Chad’s nickname around our house.
There are still cookies in our cookie jar from early August. I can’t throw them out just yet.
Cailyn got to lead the Conga line with Abby Cadabby and I’ve never seen her smile so much.
Carys finally warmed up to Elmo — who doesn’t love Elmo!?!

We played all day at the waterpark and pool and then made our way to the beach for a photoshoot before dinner.
After we dined on turkey and all the delicious food, we walked around for a while and chatted.
Sweet, sweet girls.
Who are, surprisingly, getting along (and not driving me crazy). For the most part…

While they were napping today, I took some photos right outside our room of the flowers & such.
I brought Chad’s wedding ring with me, and I took a few pictures of that as well.
It was a good day, with a few tears. But it was still good.
I kept telling myself that Chad wouldn’t want us to be so melancholy in a place as beautiful as this.
And I chose this island specifically because I think it’s as close to Heaven as we can possibly be.

Anyway — here are pictures from the last twenty-four hours.  (You can click to make them larger in a new window….)
Enjoy.
Happy Thanksgiving.
thanksgiving 1
thanksgiving 2
thanksgiving 3
thanksgiving 4

Memories

CLL (359)

Light the corners of my mind
Misty water-colored memories

CLL (369)

Of the way we were
Scattered pictures,

CLL (420)

Of the smiles we left behind
Smiles we gave to one another

CLL (459)

For the way we were
Can it be that it was all so simple then?

CLL (488)

Or has time re-written every line?
If we had the chance to do it all again

CLL (543)

Tell me, would we? Could we?
Memories, may be beautiful and yet

CLL (555)

What’s too painful to remember
We simply choose to forget

CLL (594)

So it’s the laughter
We will remember

CLL (606)

Whenever we remember…
The way we were…
the way we were…

CLL (612)

Barbra Streisand

Last day of Summer

So today was the last day of our Summer vacation.
Carys starts school tomorrow as a FIRST GRADER. I can hardly believe it.

We had so much to do today, and we got it all done.
We saw Chad right after lunch time, and we literally stayed for 5 minutes.
Cailyn spent ALL morning drawing him pictures and she was so excited to show him.
He was so tired and didn’t really want the kids to be there – I could tell by his eyes getting wide as silver dollars the moment they entered the room. He was a little agitated with Cailyn for something mundane — and slapped her in the noggin a few times. Poor girl. She was heart broken and ended up folding her pictures up and putting them in her purse.
They both got to give him a kiss on the arm before we left.
And I got to speak with the doctor briefly — only to ask about his fever and such. Still running a fever, still no appetite. They are slowly weaning off the steroids so Chad doesn’t have any withdrawal symptoms. And they are slowing down one of his seizure meds because it seems to be in therapeutic level, according to a blood test they did yesterday.

Carys was upset that she didn’t get to see Daddy for very long and cried on the way home.
I assured them we would try again tomorrow.
I hope it’s a better visit for their sakes.

Anyway — here are some shots from today. We had a nice little rain shower this evening and I let the girls just run around and be kids! They had so much fun … which is my wish for them every single day of their life. Our Ultimate Summer may have been cut short, but I hope we crammed enough good memories in to last them for a while!

040a026a023a012a018a
And a shot of a dragonfly that was just begging to have his picture taken a little over a week ago. I’ve never really seen one this close before; they usually buzz away just as quickly as they land.
He looks like he has a little smile painted on his face, doesn’t he?

dragonfly 007