Mark your calendars!

Back in the Spring, my best friends (and fabulous neighbors) asked if they could organize a fundraiser for us.
Well, it may have taken Chad & I a while to think about it…and you can finally mark your calendars!

Chad’s fundraiser will be Saturday, April 24, at Garner Advent Christian Church.
You can buy tickets in advance, and I strongly encourage you to do so.
Please send an email to the Jones bunch if you are interested in ticket presales or volunteering the day of the event.

We appreciate your support and can’t wait to see you all there!
More details as soon as they are available.

All about my stinkin’ diabetes

I’ve had an insulin pump since May 2008. It took me a while to get used to it; the constant “thing” being attached to me. I even took it off for a while and refused to wear it. Stupid, I know. There was just something mental I had to get past; I didn’t want a constant reminder that my body was failing me.
I still struggle with diabetes. I hate it, in fact. Is it limiting? Not really; at least not in the traditional sense of the word. I can eat what I want to, I just have to be more careful. And for a person that has a severe sweet tooth, that is extremely difficult.

I recently upgraded to the Animas One Touch Ping insulin pump.
My old pump was working just fine, but I felt the urge to take better control of this sugar-fueled life of mine.
If I wanted ultimate control, I would splurge for a Continuous Glucose Monitoring System (CGMS), but insurance doesn’t pay for it — so, I’ll have to wait until they do. If they ever will. THAT (CGMS) would completely help me out. It’s another little device that I would insert into my abdomen every few days that constantly checks my blood sugar FOR me. It tells my pump when I’m low, when I’m high — and makes adjustments or recommendations based on those readings. In order for insurance to pay for it, I have to run severely LOW all the time. And I have the exact opposite problem – I can’t get my numbers low. They are always HIGH.

My friendly UPS man delivered a ginormous box from the Animas company at the end of January.
And I opened it. I looked at the new shiny pump.
And I returned the old pink one.
And I just let the new one sit in the box for a few weeks.
I did injections while I made up my mind that I was ready for this new journey.
Trust me when I tell you that is stupid. I know that is stupid. I just wasn’t completely ready to dive in and accept this annoying disease….again. It’s easier to ignore it, even though I know I shouldn’t.

I’m ready. I’m taking control. (Again)

Some people have asked me about this new pump – so, here I am – letting you know all about it!

pumping
Every 2-4 days, I insert a new catheter into my abdomen (A). The catheter has a tube that leads to the insulin pump itself (B). From there, I am able to administer insulin before and after meals, before bed…whenever I need it. And gosh, does it seem like I need it ALL the time!
It has a nifty little carb counter that helps me adjust my insulin for meals if I want, or I can gauge how much I need based on what I eat. I also have it programmed to give me basal doses (small doses every 15 minutes) based on my blood sugar history. For example, I always have a higher glucose reading in the morning. Many diabetics do. It’s called dawn phenomenon, and no one really knows why it happens. So, every morning at 2am and 6:30am, while I am fast asleep,  my pump gives me a little extra push of insulin to help me combat the blasted dawn phenomenon. Sometimes it’s enough to help. Other times, it’s not. But it’s a good start.

What’s different about this particular pump (as compared to my last one), is that it has a remote (C). Wearing the pump itself can be a little challenging. I don’t like to wear it on my waistband – I bump things with it and scratch it — which is what happened to my last one. There were so many scratches that I could barely read the screen.
So, I often wear the pump under my clothing, tucked away where it’s out of harm’s way. But that also makes it difficult to give boluses (doses of insulin) when I have to excuse myself to the bathroom or to another room to fish the pump out of my clothing. It was a severe pain!
The remote allows me to wear the pump wherever I choose, and I don’t have to worry about finding a place to excuse myself to give myself insulin.
The remote also has a built-in glucometer, so my glucose readings are fed right into the pump. It knows how much insulin I need based on the glucometer readings. It takes a step out of the process for me – which is less to worry about.
It’s quite nifty!

After some searching, trials & errors, I have finally found an endocrinologist that I LOVE. His office has been very good to me and has helped me get the best possible care for my diabetic life. Is it perfect? No. I have days where the last thing I think about is checking my blood sugar. It happens more often that I care to admit.
I would be lying if I said this diabetes thing was easy. It’s a PAIN. But it’s manageable.

The thing I hate most about the pump is the fact that is so stinkin’ hard to lose weight while you’re pumping. It’s probably not impossible but it feels like it at times. I know a few extra pounds is a fair trade for having fully functioning eyes, kidneys and nerve endings.

Snow, Snow, Snow!

I am OVER the snow.
It’s beautiful & fun – for the first 20 minutes.
The clothing layers & constant “Mommy, I gotta pee!” as soon as I get them all layered up? Not fun…especially since I ask them about twelve times if they need to use the potty before we get dressed.

I would much rather be sinking my feet into the sand at the beach — with a beautiful temperature switch to 92 degrees instead of 29.
Bring on SUMMER!

While I wait (impatiently) for the seasons to change, enjoy some pictures from today.
snow collagesnow! 005snow! 036snow! 042snow! 054snow! 058snow! 050

Valentine’s already?!? EEK!!!

I received a note from Carys’ school a few weeks ago. It gently reminded parents that Valentine’s Day was coming up and the kids would need to make their own valentine holders to bring to school.
At first, I was a little disappointed. I LOVE making things with my kids. But I remember how much fun I had in school making a holder for all the little dainty cards from my friends. It was more fun than making them at home. Or, at least I thought so at the time.

I tucked the information away in my memory bank.
Which is a joke. Because everyone knows I can barely remember which name goes with which kid here in our house.

So, Tuesday, I get another note from the teacher. Another gentle reminder that our crafty holders need to be brought to school no later than February 10.
Oopsie.
That darned memory bank hath failed me again.

Ah. Easy enough. Cover a shoe box with some wrapping paper. Call it a day.
Oh.
But we don’t have any shoe boxes.
Can someone tell me how, in a house of eight feet, we do not have a single shoe box?
Ah. Right. I decided to declutter my home a few weeks ago.
No shoe boxes.
What next? Milk carton?
Yuck. I would have to wash that thoroughly. And it would still smell like nasty milk crud.

So, I settled on an oatmeal canister.
I thought it was quite crafty.
And Carys thought I had lost my mind.

But, she was soon ecstatic.
We cut.
We glued.
We stapled.
We stickered.
We laughed.

When it was finished, Carys dubbed her holder, “the coolest valentine holder ever made.”
And then I was dubbed, “the best mommy in the whole world.”
Sweet little kiddo.

holder collage
She cannot wait to stuff that sucker full of…suckers.
And chocolate.
And cute little notes from her best little friends.

And, I take back what I said about having more fun making these crafts in school.
It’s much more fun to make them at home with my girl. Hands down.

An ordinary day turns extraordinary

“Now faith is being sure of what we hope for and certain of what we do not see.” — Hebrews 11:1

Today was a special day.
I had lunch with Care Bear at school, and then I gleefully fulfilled my duties as guest reader for C’s kindergarten class.
Carys has been so excited all week – she couldn’t stand the suspense.
I kept hearing “Is today the day? Or tomorrow? Which day!?!?“; a constant little loop of a conversation.
She picked out the books she wanted me to take to school – and then changed her mind a katrillion times. Or maybe just three times. But it felt like a katrillion.

It was a sweet moment. And I made so many new little friends, too.
It also opened my eyes. I’ve been so worried about how affectionate Carys is.
Don’t get me wrong – she’s a sweet, caring, delightful little girl. But, sometimes, I think she’s a little too friendly. A little too quick to hug & kiss EVERYONE.
But today, I discovered many kindergartners are that way.
I’m not raising a Little Lolita, after all.

That, by itself, was a great day.

Then afterward, it was a normal day for me.
I ran some errands.
Checked off some items from my own honey-do list.
Picked up some groceries.
Got home and unloaded everything
I then made my way to the mailbox.

It was raining.
Not fun. I almost decided to wait until tomorrow to check the mail.
I convinced myself there was nothing but bills and offers for free trial gym memberships.
And those can wait another day. Or skip themselves to the trash. Either option was fine with me.

But I finally checked the mailbox.
Amidst the junk mail, I instantly saw an envelope from Social Security.
And then another.

Oh. Dear.

There was an instant knot in my stomach.
My perfectly fine, perfectly normal, perfectly good day came to a crashing halt.
My stomach ulcers started to revolt.

I pulled both envelopes to the top of the pile.
And thought for a minute.
Would they really send me TWO denial letters?
Well, yes. I bet they would.
And really? It has only been about 3 weeks since I turned all of the paperwork in.
The letters were probably requesting more information.
Or denying us benefits.
Or … whatever.
It was too early for good news.

I’ve never been one for surprises. And those little envelopes had a shock inside.
Could be good. Could be bad. I had no idea which.

After nearly fifteen seconds that felt like a mind-jarring eternity, I couldn’t stand the suspense any longer.
I tore into the heftier letter first, convinced it was chock full of information for filing an appeal for a denied application.

Imagine my sheer surprise -and instant gratefulness, humility and thankfulness- when I read the opening statement.
“Dear Chad L. Lanford,
You are entitled to monthly disability benefits beginning May 2010.”

You cannot imagine the weight that disappeared from my heavy shoulders. In an instant.
I almost ran back from the mailbox.
Mostly because it was raining.
But also because I wanted to scream, yell, hoot & holler (that’s what Southern girls do, after all)!
I got teary eyed, just in time for Cailyn to see.
“What’s the matter, Mama?”, she asked.
Oh – these are happy tears, baby!”
She hasn’t heard of happy tears. Or at least, not recently enough for her to remember.

Oh, were they ever tears of happiness!
Tears of tremendous joy.
Tears of frustration solved.
Tears of anxiety remedied.
Tears of sheer thankfulness.
Tears of gratitude for a prayer I prayed too often in the last few months.

I know so many of you have been praying for our family, and for Chad specifically.
I thank you. Each and every one of you, for the prayers you lift up for our family.
God hears us!

There is no explanation

cailyn's faces!

She’s fickle.
She’s moody.
She’s sweet.
She’s sassy.

***

She’s three…
or
she’s thirteen.
I’m not sure which.

***

She’s my little drama queen
butter bean, too.

***

She loves the camera.
In case you
couldn’t tell…

***

My little sunshine.
My little diva.
My little actress.
My little ballerina.
My little fibber.
My little tattle tale.
My little lady.
My little cuddler.
My little biter.
My little fashionista.
My little jokester.
My little eater!
My little sleeper.
My little dancer.
My little singer.

***

Little
Miss
Everything.

***

My.
Oh.
My.
She’s mine!

***

Unless
she’s
grumpy.

***

Then, she’s
all yours!

Frustrated with medications — again.

1 truck & snow 020

Chad was originally scheduled to see Dr. Tatter, Dr. Lesser & receive an MRI on February 8. But, of course, that appointment was canceled because Dr. T had to be out of town. The next best date they could schedule? MARCH 4.
This just frustrates me beyond belief.
The main reason I’m annoyed is that Chad is nearly out of medications for pain.
I call to get a refill and to talk to the PA about trying something different. This is a conversation we have nearly every month.

He (the PA) really wants to help Chad. He says he’s going to look into a few other options & call me back.
Great.
A few hours pass, and he does call back.
Only to let me know that Chad is on the strongest dose of the strongest medicine they want him on right now.
In other words, they won’t give him anything different until they see him in the clinic.
I ask, specifically, what drugs are next in line — and I’m told “heavy-duty narcotics. Morphine. Dilaudid. But….”
There is always a ‘but‘.
“…but we don’t want to put him on those until we see him in the clinic and assess his pain level.”
When I explain that we won’t be back until MARCH FOURTH, he admits that’s a long time, but he’s sorry – there’s nothing else they can put Chad on until then. He understands that his currents meds take an HOUR or more to kick in, and they only make Chad tired. The medications don’t really do anything for the pain.

And I understand, too.
We’re getting to the point with pain medications where it’s a fine balance between controlling pain and doping Chad up. I don’t want Chad to suffer through either of those options.
I want him pain-free.
And I want him to be him, at least as much as he can be now.

It’s also important to note that when Chad goes for an appointment and they are assessing his pain level, he always downplays it. They ask, “how are you?”, he says, “okay.”
He doesn’t elaborate.
He doesn’t tell them that he is in bed because his head hurts too bad to sit up and get out.
He doesn’t tell them that his memory is getting worse, daily.
He doesn’t tell them that he often forgets which pain meds he’s taken.
Or how often he took them.
Or, if he didn’t.

I know the doctors and PAs think I am blowing things out of proportion.
But…I don’t really care what they think.

I don’t think Chad knows how to clearly define the way he does feel on a regular basis. For instance, he’s been out of bed a little more than normal lately. I always think that means he’s feeling marginally better. And he always reminds me that he’s not feeling better; he’s just used to it and trying to move forward.

He really does want to get out and see his friends, do things. But he just can’t.
He can’t handle noise or talking or too many people.
He really does miss everyone though – I guarantee you!

Snow Day #3

This is what Snow Day Exhaustion looks like.

1 019

And this is what it looks like when Mommy is determined to get Cailyn down the hill via sled.
I have to go with her — duh.
And, apparently, I have to look like a lumberjack while doing it.

1 sled cailyn
Today is Snow Day #4.
No school for the kids again.
And Carys has to go to school this Saturday to make up for it.
Bah Humbug!

Snow Day #2

And….school is officially canceled for tomorrow!

Snow Day 2 035Snow Day 2 033Snow Day 2 032Snow Day 2 026Snow Day 2 024Snow Day 2 0201 Snow Day 2 0671 Snow Day 2 0631 Snow Day 2 0621 Snow Day 2 0601 Snow Day 2 045

Snow Day!

It’s a snow day, by golly! I really didn’t have much faith in the meteorologists this time around.
I was a little shocked to see about 3.5″ of snow this morning.
Needless to say, the girls have been driving all of us adults crazy today, wanting to go out & play.
Of course we all bundled ourselves up and went outside. For about twenty minutes…or until Cailyn started to say her hands were hurting. That’s a big sign to GO INSIDE.
We warmed up with hot cocoa and soup — and requisite snow cream.
Here are some pictures from today – and the rest of the week. Enjoy! And stay toasty warm!!!

Cailyn told me it hurt her face to smile because it was so cold – silly girl!

1 truck & snow 061



I kid you not, this kid is always smiling. And always happy.
Well, maybe not the first five minutes of her day.
But I’m not very cheerful then either, so I understand.

1 truck & snow 056



CaiCai thought it was hilarious that we were using boogie boards on the snow.
“But ‘dis is fo’ da beach. Not da snow. People will fink we are cwazy!”

Guess what, Cailyn? They already think that…

1 truck & snow 050

Carys LOVES it!

1 truck & snow 042

Nana pushing them to their icy demise the bottom of the driveway

1 truck & snow 040

Carys, doing her homework this week….she LOVES that too.

1 truck & snow 030

Her homework — that made me laugh until my sides hurt.
She is supposed to be using her sounds to spell things by herself — and she did a good job.
But it still made me snort a few times…

1 truck & snow 026

Bye-bye to the truck earlier this week…and you’ll notice Chad has lost a bit of weight, too.
And gained a new little 30-pound sidekick. She loves her daddy something fierce lately!

1 truck & snow 019

It’s hard to believe it was 60 degrees earlier this week.
And today we have to wear 15 layers to stay warm in the SNOW!

1 truck & snow 005