First & Last

I thought I had shared these images on the blog. But I see that actually didn’t.

Just check out how much my little punkin changed over the course of a school year.
I swear she grew overnight. Or at least it feels that way.

On the first day of school, she let me pick her clothes.
She was excited.
Nervous.
You can see the lack of confidence in her sweet little smile.

And I was shooting with my point-and-shoot Panasonic (which I still love!), as I hadn’t received my Canon DSLR yet

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And here she is, ten full months later, on the last day of kindergarten.
Sassy.
Confident.
Nervous no more!
Picking her own clothes and developing her own style.

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And just like that, I have a first grader.
Hard to believe that her first year of public school is over.
Part of me thinks I should show you a picture of ME from Carys’ first and last days of school.
I think I have probably gained a few gray hairs over the course of the last year.
Lucky for you (and me), I don’t have any photos of myself!

Keeping up with Chad

Since Chad’s seizure in May, I haven’t had much to share. Things have been relatively quiet on the Chad front.
He is having a few issues, but nothing completely unexpected.
Some days are better than others, and we just deal with it. Everyday is a new normal.

Chad has had a problem with his right side (arm & leg) for quite a while. Neither of us feel he fully regained his strength after his tumor resection in March 2009, despite frequently passing the routine neuro evaluations for strength control.
He has tremor-like movements in his right hand daily. If he were to hold a sheet of paper in his right hand as still as he possibly could, it would still wave as if a breeze were blowing.
His right leg and foot have started to behave a little (more) erratically since the May seizure.
When we saw his neurologist at the end of May, she finally diagnosed him with Apraxia on his right side; which is a disorder of motor planning. It’s caused by damage to specific areas of the brain, characterized by loss of the ability to execute or carry out learned purposeful movements.
He has a hard time going up and down stairs, as he just cannot make his right foot move the way it should. This means he trips and sometimes falls; and he fell quite a bit last week.
Although I don’t see it in the immediate future, I think having a cane of walker will be very beneficial in time. There is nothing we can do about the Apraxia; we just have to recognize (and remember) Chad’s limits. The lack of motor control is more exaggerated when he is over-tired, for example.
Chad’s memory is still patchy. He remembers lots of things for different reason ans associations; and sometimes it baffles me what he actually does remember versus what he does not. The brain is a tricky, tricky thing!

He is having some increased difficulty remembering his medications, their purposes, his medication schedule and ordering schedule.
I try to give him as much autonomy as possible with his medications, and I check behind him frequently.
With the addition of new meds and changes in  ongoing drugs last month, he has just been a little more confused.
He has been organizing his pills in a pill box since this journey began in November 2007; but it’s getting a little complicated.
Last week, I made us each a list of his current medications, dosages and schedules for each of our wallets. I just couldn’t remember all the changes recently, and felt it best to have a list to hand to the nurses when they ask for changes in meds.

Just this morning, I made a new list for Chad to tape to his medication locker.
It lists each medication and how many pills equal the proper dose. There are two columns for AM and PM, so I hope this will help him feel more in control of counting out his medications. And I will feel better when I double-check behind him.

The ordering part is driving me crazy. I wish I could order everything on one specific day of the month. It’s just not working out that way – yet.

We venture to Winston-Salem next Tuesday (June 29) for another MRI and a discussion with Dr. T.
We still have so many questions about Chad’s current state of health and mental clarity — and I’m growing increasingly frustrated with the lack of answers (or a plan of action).

Thank you for your continued prayers, support and positive thoughts.

Full Day + Heat = Fullblown Meltdown

The girls & I had a full day today.

Doctor’s appointment this morning.
Bathroom break.
Followed by a playdate and shady picnic with some buddies.
Bathroom break.
Followed by a trip to our favorite wholesale club.
Bathroom break.
Followed by a leisurely stroll through a sporting goods store.
Bathroom break.
Followed by a trip to our favorite retail super center.
Followed by a trip to my favorite little thrift store. Which was closed. Unfair.
Followed by a prompt trip home.
Bathroom break.
Followed by a nice little meltdown.
Followed by….silence.

I wandered off to see what had happened to my quite cantankerous four-year-old.

Poor kid. She didn’t even make it to the bed!

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Cailyn’s Photoshoot

You saw some of the pictures from Cailyn’s 4-year photo shoot at the end of her birthday video last week. I couldn’t fit them all in, so I decided to share them here.
She picked out her own clothes – which you’ll know is just Cailyn, if you have ever met her. I promise you, this child will be in the entertainment industry someday. I see her doing wardrobe styling or something like that. It’s just her thang

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We also had a friend join us. Spencer will be turning two in a few weeks, so we took his two-year-old portraits at the same location. He is such a sweet, sweet boy!
I was really happy with this location, until the mosquitoes attacked. Note to self: always have bug spray at hand.
No. Matter. What.


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B+E Wedding

I had to pleasure of shooting with one of my good friends, Holly of Aperture Aficionado Photography, a little over a month ago.
It has been so hectic around there, that I’m just now getting around to posting a few for you to see.
I’ve also updated my photography website with some new pictures (look in the following galleries: Children, Babies & Weddings).

After this particular wedding, Holly asked if we could take some portraits at a local ranch.
So we did.
And there was a zebra in the fence! So neat. You can see him in the background of the first and last shots posted below.

I will be shooting another wedding this weekend with Candace in Fayetteville — really looking forward to that :)

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Happy Birthday, my sweet Cailyn!

Dearest Cailyn,
Four short years ago, I was anxiously awaiting the arrival of my second daughter.
I fantasized about your newborn scent, the grasp of your tiny fingers upon mine and the first precious time I would see you smile or hear you giggle. I hoped you would have a fantastic bond with your older sister. And I just knew that you would complete the circle of our family.

Now, four years later, you are still my baby.
You still like to rest your hand in mine.
Your smile and giggle still make me chuckle.
You are your sister’s best friend. And at times, her worst enemy. But I hear that’s pretty typical with sisters.

You have grown so much this last year.
You started preschool. The first few days, you cried. And I expected it. Anyone that knows you also knows that you are a true mommy’s girl. You would grip my legs/arm/shirt/whatever as tightly as you could when presented with strangers or a different situation. But this year? This year the grasp has loosened.

You have learned to write your name and draw dandy little people and animals.
You make me cards every chance you get and I’m afraid I will have to rent a storage unit to house all of your artwork.

Precious, you are.

This year, though, you have also found your sass. And your squeal. And your attitude.
You are finding yourself.
I feel so privileged to have a front row seat to the everyday theatrics of Cailyn’s World.

You love dressing up and having tea parties.
You play with your Littlest Pet Shop collection for hours.
You have learned what a Pinky Promise is and we perform this little ritual several times a week when I mention we might have an ice cream sundae for good behavior.
You like things done a certain way, or Cailyn’s World falls apart.
And that’s okay, because you’re also learning a lot about compromise and consequences.

Before school started this year, we moved you out of your sister’s bedroom and gave you your very own room.
You were so proud. You painstakingly placed your toys and cherished possessions in “just da wight spot”. Oh, and I pity the fool who tried to “clean” your room, for you knew where each item belonged.
You started announcing it was time to nap and would happily tuck yourself into your own bed whenever you felt the need. You just liked hanging out in there.
You still do, but I’m finding you snuggled up next to your sister more and more these days. And I think it’s absolutely adorable that you would rather fight for your share of the blanket than be apart from Carys.
You love her so, so much.

You’ve turned into Daddy’s Buddy this year, too.
You’ve always been attached to my hip; and I have SO loved walking into the the living room to see you cuddled with Daddy in his chair, watching television. You’ve loved having him home so much.
You want to help him do things, like cut the grass and check the mail. And you get so excited when Daddy joins us for an excursion to the park, beach or even the grocery store.

Your favorite things in the world, in no particular order, are:
Maisy Mouse, your beloved tag-a-long.
Being outside until you get dirty. Then you’re done.
Drawing.
Lucy the wonder dog.
Fiona the wonder cat.
PlayDoh.
Watermelon.
Ice water.
“Swimming”. Which is really you just begging me to hold you in the pool, lake or ocean.
Naps time. Seriously. You love a “big fat nap.”
Gummy worms.
Bubble gum. You try so hard to blow bubbles.

I still can’t believe you’re four.
Sometimes you act much older than that.
And sometime you have to remind me that you “are still vewy tiny, Mommy”.

Very often, you will stop what you’re doing and run to me, so excited.
“What is it, CaiCai?”
“I just had to tell you I love you so much, Mommy!”
And off you go, to play and laugh.
Those are the best moments of my day, every day.

My baby.
My sweet, sweet Cailyn.

Happy Birthday sweet girl.
I hope you always know I love you as high as the sky and as deep as the ocean.

Music: John Mayer, The Heart of Life

Bye-Bye Kindergarten!

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Carys has been protesting the end of the school year.
Not the homework, getting up and going to bed early, or behaving part.
The moving up to a new grade part.

She has finally made peace with it though.
She walked across the stage today and proudly smiled at me.
She was so stinkin’ proud of herself.
She won an award for being a good student all year and won her class’ award for most books read (over 600, and yes, we DID read that many!).

Next week marks her last day of school as a kindergartner.
Wow.
And I thought I would never survive this year without her at home.
And now…I wonder how I will survive the Summer with her home.

I kid. (Kinda.)

Congratulations to my little graduate!
We are so proud of you!

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Best Friends

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The Delightful Miss Charlotte

Meet Charlotte.
She’s 14 months old.
And sweet as pie.
And adorable.
And full of grins and giggles and gurgles.

Did I mention how sweet she was during our shoot last week?
Absolutely delightful!

Thanks, Donna, for letting me capture her newest skill: walking!

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I’ve also made some cosmetic changes to my photography site.
Visit when you have a moment. I hope you enjoy it — I’ve had a lot of fun putting it together and plan even more tweaks in the near future.
I am definitely staying busy with photoshoots lately; which does my heart good!
It feels completely AWESOME to do something I absolutely love and make others happy at the same time.

I currently have limited slots available in the next few weeks and months — so please shoot me an email if you’d like to schedule a session.
Portrait sessions are $100 for a limited time only. Email me! You’ll be glad you did. I guarantee it :)

Licky-what? and other Lanford updates

After waiting on pins & needles all weekend about Cailyn’s blood test, I heard from our PA Monday evening. The two tests he had in hand were negative. No Lyme’s. No Rocky Mountain Spotted Fever. But we had to wait for the third test to come back Tuesday.

As luck would have it, I was away with Chad Tuesday afternoon while he had PRK performed (a laser eye surgery to try and help his right eye focus better). I missed the call, but my mom was here to talk to the PA.

“The third test is positive for a exposure to ehrlichiosis.”  And now I’ll just paraphrase:  with her current antibiotic, she should be just fine.
What the heck is licky-what?
You can read more about it at the CDC website, which is just what I did. (Click on CDC and it will take you straight to the ehrlichiosis page.)

It’s a bacterial illness that causes flu-like symptoms and can lead to more serious stuff if left untreated. Thankfully, we were on top of it and the little miss will be alright. If she shows any further symptoms this Summer, we may have to have her tested for Lyme’s again, as it can sometimes take a while to show up in the bloodstream and mimics many other common illnesses, so it’s hard to diagnose at times. I’m hoping we won’t have to worry about it. And rest assured I’ll freak out every time she catches a tiny cold this Summer.

She turns FOUR very soon and we’re planning her birthday party. She is so excited!

Chad handled his PRK well. He was in some pain last night, but it seems to be a bit better today. He had a follow-up exam this morning and will have to go in again on Friday to (maybe) have the contact lens removed in his right eye. The lens is there temporarily to help protect his eye and help everything stay in place as it heals.
This is the third eye procedure he’s had done in three years, so we’re hopeful that this one will help him see better and we’ll be done with laser eye surgeries.

He is chronically tired, which I don’t see improving. We’ve finally gotten the green light to try more Ritalin during the day, so we’ll try that and see if it helps any.

He has an appointment with his oncologist next week, as well as his neurologist. I see some more “trial-and-error” talks coming, which just makes me tired.

He did join us at the lake on Saturday for my cousin’s 21st birthday party. It was a long day for him, but I he stuck it out all day.

He cut his hair all off again. I’ll make him pose for a picture when he’s feeling up to it.
He looks like a fresh Army recruit, all shaved down.

Carys is doing great! She will complete kindergarten in a few more weeks. Her last day is June 10.
I can’t wait to see her walk across the stage for kinder graduation. So sweet!

And for me?
Staying busy.
Watching the miles turn over on the van from all the driving I’ve done recently.
Photoshoots are filling my free time! And I couldn’t be more excited about the things that are coming up!