Monthly Archives: August 2010

Daily update 8.31.2010

I realize I skipped a couple of days. There hasn’t bee much to report, which is a good thing. I suppose. Chad is about the same. He is weak, but still tries to escape the bed every chance he gets. … Continue reading

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My beautiful, wise daughter

Tonight, as we were saying our prayers and talking about our day, Carys said the most beautiful thing. She does that quite often – she’s wise beyond her years. She looked me straight in the eye and said, “If you … Continue reading

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Minnie Mouse makes a visit to the girls

As soon as we could, we requested a wish from the Dream Foundation – it’s like Make A Wish, but for adults with life-limiting illnesses. We were approved for a trip to Disney, but Chad wasn’t up for travel at … Continue reading

Posted in Chad, Chatter, the girls | 3 Comments

Friday Update

Chad had several visitors today, and he told me he enjoyed the visits! He also said that he wanted visitors to come — which is a huge change. So, if you’d like to see him, please do so! I think … Continue reading

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First day of First Grade

The morning started off a little rocky. Carys wasn’t very excited about going to First Grade. She cried a bit and told me how much she missed Daddy and was excited when I mentioned we would be taking him dinner … Continue reading

Posted in Chad, Chatter, the girls | 3 Comments

Last day of Summer

So today was the last day of our Summer vacation. Carys starts school tomorrow as a FIRST GRADER. I can hardly believe it. We had so much to do today, and we got it all done. We saw Chad right … Continue reading

Posted in Chad, Chatter, no words, photography, the girls | 3 Comments

Just Words

I often struggle with how much to share publicly. But then I remember that Chad told me to share it all — he wanted others to know what it’s like and he wanted people facing a similar situation to understand … Continue reading

Posted in Chad, Chatter | 7 Comments

Whirlwind

Tuesday around lunch time, the hospice nurse and social worker showed up at my house. I had no clue they were coming. They told me that there was a bed available that day and we needed to jump on it … Continue reading

Posted in Chad, Chatter | 7 Comments

HOPE

I know there is hope. There is always HOPE. And Faith. And Love. Thank you for all of your kind comments yesterday. It was a difficult weekend and today wasn’t a lot better. I did want you to know that … Continue reading

Posted in Chad, Chatter, the girls | 20 Comments

Bad night

We had a terrible night. Chad fell. A lot. A few of the falls were definitely seizures. The others were him being disoriented in his own home. I am so exhausted. He is so bruised. Yesterday, in the few moments … Continue reading

Posted in Chad, Chatter, no words | 7 Comments